{"id":595,"date":"2019-02-07T17:19:28","date_gmt":"2019-02-07T17:19:28","guid":{"rendered":"http:\/\/www.prader-willi.ro\/?p=595"},"modified":"2019-03-11T20:41:08","modified_gmt":"2019-03-11T20:41:08","slug":"2","status":"publish","type":"post","link":"https:\/\/www.prader-willi.ro\/index.php\/2019\/02\/07\/2\/","title":{"rendered":"2%"},"content":{"rendered":"\n<figure class=\"wp-block-image\"><img decoding=\"async\" src=\"https:\/\/www.prader-willi.ro\/wp-content\/uploads\/2019\/02\/img-20190207-wa00002879677801446206413.jpg\" alt=\"\" class=\"wp-image-592\"\/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Bun\u0103!<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Eu sunt \u0218tefan, am 1 an \u0219i jum\u0103tate \u0219i am sindromul Prader-Willi. Este un sindrom genetic care apare 1 dat\u0103 la 15.000 de na\u0219teri dintr-un accident \u00een momentul concep\u021biei. Nu exist\u0103 tratament, exist\u0103 speran\u021b\u0103 \u00een descoperirea, m\u0103car, a unor tratamente care s\u0103 ajute la gestionarea unor manifest\u0103ri ale sindromului (hiperfagie, crize temperamentale).<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Tot ce se poate face acum sunt diverse terapii: kinetoterapie (am \u00eenceput de la 2 luni de via\u021b\u0103), terapie ocupational\u0103, logopedie, \u00eenot, \u00eent\u00e2lniri cu psihologul \u0219i multe alte terapii care s\u0103 m\u0103 ajute s\u0103 duc o via\u021b\u0103 c\u00e2t mai aproape de normal \u0219i semiindependent\u0103, partea cu alimenta\u021bia necesit\u00e2nd supraveghere fizic\u0103 toat\u0103 via\u021ba.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Ca s\u0103 poat\u0103 continua pe drumul \u00eenceput (dup\u0103 at\u00e2ta munc\u0103, reu\u0219esc, la v\u00e2rsta asta, s\u0103 merg \u00een 4 labe), p\u0103rin\u021bii mei au \u00eenfiin\u021bat Asocia\u021bia Prader-Willi Bucure\u0219ti care are ca scop ajutorarea mea \u0219i, \u00een viitor, sper\u0103m, \u0219i a altor copii care, ca \u0219i mine, sufer\u0103 de acest sindrom.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Dac\u0103 vrei, m\u0103 po\u021bi ajuta redirec\u021bion\u00e2nd 2% din cei 10% re\u021binu\u021bi drept impozit pe salariu datorat statului, c\u0103tre Asocia\u021bia Prader-Willi Bucure\u0219ti cu scopul de a-mi putea pl\u0103ti terapiile care, o dat\u0103 cu cre\u0219terea \u00een v\u00e2rst\u0103, cresc \u0219i ele ca num\u0103r \u0219i costuri (spre exemplu, un abonament de 10 \u0219edin\u021be de kinetoterapie cost\u0103 750 de lei, iar eu fac 3 \u0219edin\u021be pe s\u0103pt\u0103m\u00e2n\u0103).<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Mul\u021bumesc din suflet!<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Bun\u0103! Eu sunt \u0218tefan, am 1 an \u0219i jum\u0103tate \u0219i am sindromul Prader-Willi. Este un sindrom genetic care apare 1 dat\u0103 la 15.000 de na\u0219teri dintr-un accident \u00een momentul concep\u021biei. Nu exist\u0103<a class=\"moretag\" href=\"https:\/\/www.prader-willi.ro\/index.php\/2019\/02\/07\/2\/\">Read More&#8230;<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[8],"tags":[],"class_list":["post-595","post","type-post","status-publish","format-standard","hentry","category-8"],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/www.prader-willi.ro\/index.php\/wp-json\/wp\/v2\/posts\/595","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.prader-willi.ro\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.prader-willi.ro\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.prader-willi.ro\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.prader-willi.ro\/index.php\/wp-json\/wp\/v2\/comments?post=595"}],"version-history":[{"count":1,"href":"https:\/\/www.prader-willi.ro\/index.php\/wp-json\/wp\/v2\/posts\/595\/revisions"}],"predecessor-version":[{"id":596,"href":"https:\/\/www.prader-willi.ro\/index.php\/wp-json\/wp\/v2\/posts\/595\/revisions\/596"}],"wp:attachment":[{"href":"https:\/\/www.prader-willi.ro\/index.php\/wp-json\/wp\/v2\/media?parent=595"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.prader-willi.ro\/index.php\/wp-json\/wp\/v2\/categories?post=595"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.prader-willi.ro\/index.php\/wp-json\/wp\/v2\/tags?post=595"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}